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Wednesday, March 21, 2012

FuckFuckFuck

That's how it's going right now.

I have a picture post getting you all caught up on the happs but I haven't finished it yet.


Today we had our NT scan for the twins. I'm 12 weeks 4 days.

Good news is, Baby A is perfect. Heartbeat of 163bpm (I'm thinking girl!)

Bad news is, Baby B isn't okay. Heartbeat of 140-something bpm (I'm feeling boy.) Sadly, he has a omphalocele. Basically, his insides are growing outside of his body. His body is lacking the important parts to contain his intestines and such inside of the abdomen.

Feel free to google it if you wish. I do not wish.

The bottom line, this is a VERY severe defect. There is severe swelling around his head caused by the trauma his tiny body is suffering.

The perinatologist said that this is a very severe ('severe' seems to be the only appropriate word) case of that big word above and she wouldn't guess that he would make it to term.


Here's where things get awful.

Should he die naturally in the next few weeks, my body would likely not try to miscarry. He would just be in there.

Should he die later in the pregnancy (past 20 weeks,) there is a likelihood that my body would try to miscarry him thus causing preterm labor for Baby A.

There is a chance that Baby B could make it to birth but he would need very extensive surgeries to keep him alive....assuming that there is nothing else wrong aside from the omphalocele. 40ish percent of babies with this defect have additional chromosomal issues.


Here's where we are...

We are going to do a CVS. This will give us a chromosomal work-up of the baby. We'll know if this is just a "side effect" of something much bigger (trisomy 13/18...) or "just" a physical handicap.

The discussion of reduction quickly came up. I can't even wrap my mind around the idea. It makes me want to throw up. Every thing about this makes me sick.

I'm handling it by thinking of it step-by-step. First things first, CVS. See what the results are and go from there.


I am feeling...furious! Scared. Numb. Lost.

I told God that I NEVER wanted to be pregnant again if it meant not having that baby in my arms. I didn't need to be pregnant with twins. Why would I be "blessed" with two babies for this to be the result?! Since I have group B strep, the CVS will have to be performed abdominally, aka...huuuuuuge ass needle into my stomach to collect the specimen. This t-e-r-r-f-i-e-s me! I don't even want to say twins anymore. I'm detaching already. I feel terrible that I'm doing this. I'm already abandoning my sweet baby.

Ugh! So many emotions. Another state of limbo.

Hopefully well have the CVS asap but even still, the results will take 7-10 days. It's nearly another 2-fucking-week wait.

This just sucks!


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20 comments:

Esperanza said...

Oh Deanna, I'm so, so, so sorry. Words cannot express. Sending love and strength to you, your family and your beautiful babies.

Rita said...

I am so sorry this is happening. No one should have to go through this. Hugs and love to you and your babies.

Brittany Goodyear said...

I wish I could say something to take the pain away and make it better. If you need an ear or anything I can offer you know how to reach me.

missohkay said...

Oh hon, I'm so so sorry to hear this. Prayers for Baby B and A and you.

AwkwardMoments said...

I am sorry. Prayers for everyone

Gina said...

I do not know you, but I wanted to share my prayers for your family. I have a friend who Carried triplets and tow of them became angles in her belly. If your interested in hearing from her I'd be happy to share her info!

Ashley said...

Oh crap. I am SO sorry! I know nothing I can say that will help, but know that you are in my prayers.

JM said...

Oh, D... My thoughts are with you guys. I can't imagine what you are all going through, but sending love and clarity down to you guys, and strength to babies A and B.

Jay said...

I am so sorry... I am thinking of all of you. *hugs*

Beth said...

I'm sorry, dear. :(

I'll continue sending my thoughts and prayers your way.

manymanymoons said...

I'm just so sorry. There is nothing to say to make this better. Just know that I'll be thinking of you.

Stephanie said...

Oh sweet girl this is definitely not the update I wanted to hear from you. I agree, take things a step at a time, no need to get ahead of your self. I will be thinking of you and your family and hoping for the very best!

J.o.s.e.y said...

Oh God, I am SO sorry to hear this Deanna. Thoughts and prayers for you and your family during another AWFUL two week wait. :(

Suzy, Not a Fertile Myrtle said...

Oh Deanna, I am so incredibly sorry that you are going through this.

Sending you tons of love and prayers. xo

Blythe said...

Oh Wow. I am so sorry for your bad news. I'll be thinking about you and sending positive vibes. Hang in there.

A said...

I have no words other than I'm so sorry, and I hope that doesn't sound cliche. You and your little ones will be in my prayers (HUGGGG)

Crazy Twin Momma said...

I am so sorry! Praying that the test goes smoothly and that with results will come clarity one way or the other. It's definitely not fair! Many prayers for you and your family.

Brave IVF Girl said...

I'm so very sorry - my thoughts are with you.

marwil said...

I'm so sorry to read this, my heart really goes out to you. Take one step at a time and feel what you both need to do.Been given a severe prenatal diagnosis is the most devastating thing.Figuring out how to handle it is just the worst experience. I hope you are surrounded by much love and support during this difficult time.

Gil said...

Here from LFCA to say that I am terribly sorry to hear of this news. The only assvice I have? One day at a time. I can certainly understand being terrified for the CVS (I had an amnio in my pregnancy and I cried all through it) but you are strong and right now, just get through that. Any decisions that need to be made afterward, well... cross that bridge when you come to it. Hang in there. Sending love and prayers to you and yours as you travel this difficult road.